Useful Links
Relevant Sources
PlayConnect+
PlayConnect+ groups are open to all children with disability and/or developmental delay aged 0- 8 years, their families, carers and siblings. No diagnosis is required. All sessions will be facilitated by qualified professionals. PlayConnect+ is delivered by the State and Territory Playgroup Associations as part of a consortium led by Autism Queensland. Funded by the Australian Government Department of Social Services. It is also supported by the State Autism Associations.
My Time
MyTime organises supported groups where parents and carers of children with disability or other additional needs can feel understood, share ideas and access quality information and resources.
Raising Children Network
This site provides a broad array of information for all parents and for those with children with impairments. It has sections that address key issues at different age groups and an online forum for parents of children with disability
National Disability Insurance Scheme (NDIS)
childhood approach is for children with developmental delay or disability.
Children who do not fully meet the definition of developmental delay and have developmental concerns will also be supported through the early childhood approach.
Siblings Australia
This organisation focuses on support for siblings of children and adults with disability, working with siblings, their families and professionals.
CanChild – A centre for childhood disability research, is a world leader in the field for doing and sharing research findings.
Their website has multiple resources for families and professionals.
Family centred service
Your child, your family and early childhood intervention: Family Perspectives
Mental Health Support Resources
Health Direct offers links to free mental health supports.
13YARN[Thirteen YARN]
13 92 76 is the first national crisis support line for mob who are feeling overwhelmed or having difficulty coping. Offering confidential one-on-one yarning opportunity with a Lifeline-trained Aboriginal & Torres Strait Islander Crisis Supporter who can provide crisis support 24 hours a day, 7 days a week.
Carer Gateway
Emotional and practical services and support for carers. Also has some great free self-guided courses such as: Dealing with stress, recharge and reconnect and sleep
RESEARCH PAPERS AND RESOURCES
Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study.
This paper reports on the effect of taking part in the ENVISAGE-Families program on parent/carers.
Authors: L. Miller, C. Imms, A. Cross, K. Pozniak, B. O’Connor, R. Martens, V. Cavalieros, R. Babic, M. Novak-Pavlic, M. Rodrigues, A. Balram, D. Hughes, J. Ziviani & P. Rosenbaum (2022),Disability and Rehabilitation.
This link will take you to a brief summary of the paper.
If you would like a copy of the whole paper, please email us at envisage@acu.edu.au
Co-Development of the ENVISAGE-Families Program for Parents of Children with Disabilities: Reflections on a parent-researcher partnership.
Australian Occupational Therapy Journal. May 2022.
Authors: Pozniak, K., Cross, A., Babic, R., Cavalieros, V., Martens, R., Rosenbaum, P, Imms, C., Novak-Pavlic, M., Balram, A., Hughes, D., O’Connor, B., Miller, L. (2022).
This paper reports on how we worked together with parents to co-design ENVISAGE-Families. The link will take you to a brief summary of the paper.
If you would like a copy of the whole paper, please email us at envisage@acu.edu.au
Textbooks vs Storybooks
In this video parent Elizabeth Chambers talks to Dr Peter Rosenbaum about how parents are the experts on their child and that children are not a text book of diagnoses but a rich storybook of life. Elizabeth talks about how she uses videos to “brag” about her son and let his “story” be told.
Prof. Tom Shakespeare 2022
AusACPDM/IAACD Keynote presentation on models of disability (30 minutes)
The ‘F-words’ in Childhood Disability: I swear this is how we should think! Child: Care, Health and Development,
Rosenbaum, P., & Gorter, J.W. (2012).
Parent reviewers’ perspectives and experiences of a new program on raising a child with an early-onset neurodisability. Research in Developmental Disability, ENabling VISions and Growing Expectations (ENVISAGE): 121 (104105)
Authors: Miller, L., Nickson, G., Pozniak, K., Khan, D., Imms, C., Ziviani, J., Cross, A., Martens, R., Cavalieros, V., Rosenbaum, P. (2022).
This paper reports on parent/carers perspectives of the ENVISAGE-Families program and materials.